I finally have a new date for surgery: Thursday December 3. I’ve decided to go with Dr. Brown instead of Dr. Rajput and UNM (no big surprise there if you’ve been following my saga) and I’m happy with the choice. Dr. Brown’s office has been so accommodating and efficient – they’ve actually done everything they said they would! A refreshing change from my experience with UNM…
The surgery will take place at Presbyterian Hospital in Albuquerque. It’s scheduled for 12:30 and should take about 3 hours. I’m told I can expect to be in the hospital for at least five days, and perhaps longer if my recovery is slower. My dear friend Alison is coming to be with me and to act as my advocate during the hospital stay. I couldn’t ask for a better person to keep a watchful eye on the doctors and nurses, and to make sure I’m cared for properly.
Once I get home, my sweet friend Kate is coming to act as nursemaid for a week or so. Again, I couldn’t hope for anyone more nurturing to take care of me while I convalesce. My other angels, Shawn and Natasya, will also be looking in on me as they have throughout this entire ordeal. I understand I’m going to be pretty uncomfortable for about a month after the surgery, and probably on pain killers for much of that time. Dr. Brown has said that, overall, it could be 8 to 12 weeks before I’m feeling like “myself” again. So, it looks like it’s going to “take a village” to help get me through this next part of the journey.
It’s odd, but for a short time while the date for surgery was up in the air, I was able to live in a sort of irrational illusion that it wasn’t going to take place at all – that somehow I wouldn’t have to go through with this. Now, with a firm date, I’ve had to let go of my denial and accept that it really is going to happen – and soon. I’m pretty nervous about it. The prospect of living the rest of my life with a colostomy is not something I’m surrendering to easily. And I’m also really anxious about the long recovery and the level of pain I’m likely to be in afterwards.
Nearly everyone who knows anything about colon re-sections, ostomies and such, has told me that I’ll adjust over time. I keep hearing that many, many people live rather “normal” lives with ostomies. I’ve already received lots of information and can expect even more education during my hospital stay. A few friends have also given me the names and contact information of others they know who are living with a colostomy, in case I want to ask questions or just talk to someone who’s been through this. I’m so grateful for all of the support I’m getting – and yet I’m still nervous.
But, as my doctors have repeatedly told me, the priority here is cure. In order to have the best chance of long term survival, I need to be willing to give up a little function. I’ve been working hard on accepting this, realizing that resisting it won’t benefit me in any way. But I have to admit, I’m still struggling a bit with this one.
Meanwhile, the really good news is that I’m feeling well right now, eating a lot, gaining some weight back and getting stronger everyday. And I’ve got almost three weeks left to continue regaining my health, and to also work towards finding some peace within myself.
And what a village you live in, my sweet. Each of us vying for an opportunity to be at your side to help endure what must be endured and to celebrate when you are able to say, once again, that you are well and feeling great.
What is it that Lauren Bacall said to Bogey about whistle if you need me — just pucker up and blow. (?) I think it would take an entire plane to accommodate the band of angels that would fly to you. Bless Allison & Kate for being there for you. We’ll be counting on them for many updates.
Talk soon. Big hugs.
A. Carol
Karen,
I just shared some of your stories with Sydney, and she remembers fondly the day in NC when you gave her a necklace, and she wants you to know that she still has it. We both are sending you our love and positive thoughts.
xx’s and oo’s from
Kady and Syd
WOW!!! YOu are such an eloquent…and honest writer. I am thrilled to ‘hear’ positive feelings in this posting…in spite of the reality it bears within it. You are a brave goddess…and TRULY you are touching all of us by sharing this journey. I mean it!! You are still on so many peoples minds and in our prayers and I see you surrounded by golden/white light as you step out on the next part of this very intense, life changing journey.
I love you my friend…and I am inspired by you.
Loving you lots,
Karenda
Karen, i have forgotten to say, make sure the doctor orders Home Health for when you go home after your surgery and make sure the home health agency has an Ostomy nurse. they will teach you a lot in the hospital but it is impossible to take it all in and keep it in the brain (at least if you have a brain like mine, which i know you do not, yours is smarter). when you are home and on your own you will say “now where was this supposed to go??”
I hope that my comments are not too nursy for you!
i love you and am so touched by your writing to all of us.
Love,
Candy